The European Rare Kidney Disease Reference Network (ERKNet), in collaboration with EURORDIS, is thrilled to announce a webinar titled Patient Involvement in Guidelines, presented by Matt Bolz-Johnson. Scheduled for April 22nd, this event promises to offer invaluable insights into the role of patients in shaping healthcare guidelines.
Matt joined EURORDIS in 2014 and is active in a number of advocacy actions including the European Reference Networks, Mental Health & Advanced Therapies. At EURORDIS, he has been instrumental in the establishment of the ERNs, by leading the development of the assessment framework for the ERNs and also supporting the rare disease community to active in shaping the development and implementation of the European Reference Networks (ERNs).
Webinar Details:
Date: Monday, April 22nd, 2024
Time: 17:30 – 18:15 CET
Registration: Sign up here to join the webinar
Enhancing Patient Contribution in Healthcare
Matt Bolz-Johnson’s presentation will focus on how patients can best contribute in the development phase and how clinicians can encourage patient involvement.will focus on how patients can best contribute in the development phase and how clinicians can encourage patient involvement. It aims to bridge the gap between patients and clinicians, fostering a more inclusive approach to healthcare planning and implementation.
The webinar offers an opportunity for participants to ask questions and engage in discussions about patient involvement in guidelines development.