VASCERN News
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23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
This survey (available in 23 EU languages) will help EURORDIS, a European non-profit and non-governmental patient-driven alliance of patient organisations, to better understand the needs of people living with a rare disease and their families in terms of social care and coordination of care. It is a part of INNOVCare, an EU-funded project that will support European countries in implementing necessary changes in social care systems. Please find here more information about INNOVCare.
Take the Survey here