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Home - News and Events - News - Slides and recordings from webinars for the ERNs now available!

October 02 2018

Slides and recordings from webinars for the ERNs now available!

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The slides and recording from the webinars for ERNs, organised by RD-Connect together with ERN EURO-NMD, are now available!

The three webinars that took place in September, 2018 were the following:

Genomic analysis quick and easy: RD-Connect Genome-Phenome Analysis Platform (06/09/2018)
Finding registries and biosamples in just a few clicks: RD-Connect Registry & Biobank Finder and Sample Catalogue (18/09/2018)
Linking up all those data: why should we make data FAIR (26/09/2018)

You can find them all here

Vascular Tumors

Revision of Rare Vascular Tumors in the Orphanet Database

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Highlights from the International Children Camp 2024 for Primary Lymphedema

Innovative-Therapies-and-Personalised-Medicine-for-Rare-Diseases

Discover the Latest Innovations in Rare Diseases Treatment with this Free Online Course

The European Joint Programme on Rare Diseases building the rare diseases research ecosystem

Celebrating Five Years of Progress with the European Joint Programme on Rare Diseases (EJP RD)

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New Infographic and Coloring Book for Children with Lymphedema

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Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month

Rare Barometer Survey Webinar

New Survey on the Impact of Rare Diseases: Launching July 10th, 2024

ERICA 4th General Assembly

ERICA 4th General Assembly & ERN Research Conference in Udine, Italy

End-user Training for the EJP RD Virtual Platform

Join the EJP RD End-user Training Webinar on June 26, 2024!