Research News
10 January 2025
New Research Highlights Advances in Understanding and Managing Hereditary Haemorrhagic Telangiectasia (HHT)
Living with vascular EDS or supporting someone who is? Join our free webinar with Dr. Michael Frank, a vascular medicine specialist, to learn about why varicose veins occur, symptoms to watch for, and tailored treatment options. This session is designed for patients and caregivers and includes a live Q&A. Don’t miss this opportunity to get expert advice!
The slides and recording from the webinars for ERNs, organised by RD-Connect together with ERN EURO-NMD, are now available!
The three webinars that took place in September, 2018 were the following:
You can find them all here