We are excited to announce that VASCERN, in partnership with Orphanet, has successfully completed a major revision of the rare vascular tumors (ORPHA:211237) in the Orphanet database. This significant project aimed to provide better coding coverage according to the International Society for the Study of Vascular Anomalies (ISSVA) classification, ensuring more accurate and comprehensive data for these rare conditions.
Project Highlights:
- Improved Coding: The revision ensures that rare vascular tumors are now classified more accurately, aligning with the latest ISSVA guidelines. This enhancement will facilitate better diagnosis, research, and treatment for patients.
- Expert Collaboration: This project brought together leading experts in the field of rare vascular diseases, whose invaluable contributions have made this advancement possible.
- Enhanced Data Quality: With more precise coding, healthcare professionals and researchers can access higher quality data, ultimately improving patient care and advancing medical knowledge.
This achievement would not have been possible without the dedication and expertise of our Vascular Anomalies Working Group. Their commitment to advancing the understanding of rare vascular diseases is commendable, and we extend our heartfelt gratitude to all the experts involved.
We are confident that this revision will pave the way for improved diagnosis and treatment of rare vascular tumors, ultimately enhancing patient care and outcomes. We remain committed to collaborating with leading organizations and experts to continue advancing the field of rare vascular diseases.
For more information on the rare vascular tumors, click here.