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June 11 2021

Recording of the VASCERN webinar: HHT and the lungs now available!


The VASCERN webinar on the topic of “HHT and the lungs took place on May 31st, 2021 at 6pm.

This collaborative webinar involved clinicians and patient advocates from our Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG). Claudia Crocione (ePAG Co-Chair for HHT) started with a brief presentation of VASCERN and the HHT-WG. Then, Dr. Hans-Jurgen Mager and Prof. Marco Post gave an informative presentation, which was followed by a Q&A session during which they answered all the questions, with Christina Grabowski (ePAG Deputy Co-Chair for HHT) and Ria Blom (one of our ePAG Patient Advocates for HHT) helping moderate the questions received.

In case you missed it, or if would like to watch it again, the recording of this webinar is now available here.

Over 100 people registered! Thank you to everyone who registered and participated in this webinar, as well as the 5 members of the HHT-WG! It was a really interesting and interactive webinar and we look forward to more in the future!

Our next VASCERN webinar will be on the topic of “On collagen, the Ehlers-Danlos Syndromes and vascular fragility: what’s in a name?” and will take place on June 30th, 2021 at 5 PM (CET). You can register here.

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