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Home - News and Events - News - Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

October 05 2017

Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

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Output of the RD-Action workshop on Data Standardisation, co-hosted by the European Commission (DG Sante) (April 2017)

RD-Action Report on Recommended Practices for Data Standardisation in the Context of the operation of European Reference Network

Read the report here

Applications for Summer School 2025

11 September 2024

Applications Now Open for the VASCERN Summer School 2025!

MDBR2024 Grant Program

05 September 2024

ODC Announces 42 Research Opportunities for 34 Rare Diseases in the 2024 Million Dollar Bike Ride Program

02 September 2024

New 2024 ESC Guidelines on Peripheral Arterial and Aortic Diseases Endorsed by VASCERN

Updated-WHA-Public-Webinar-graphic-2

Webinar to Advocate for World Health Assembly Resolution on Rare Diseases in 2025

EURORDIS-Mental-Health-Webinar

Join the Upcoming EURORDIS Mental Health & Wellbeing Webinar on Delivering a Rare Disease Diagnosis

Bewährtes und Neues zur Moyamoya-Angiopathie

Replay Available: VASCERN Webinar on Moyamoya Angiopathy with Prof. Dr. Markus Kraemer

Patient Pathway

New CADASIL Patient Pathway Now Online!

JARDIN launches its new website

Vascular Tumors

Revision of Rare Vascular Tumors in the Orphanet Database