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Home - News and Events - News - Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

October 05 2017

Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

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Output of the RD-Action workshop on Data Standardisation, co-hosted by the European Commission (DG Sante) (April 2017)

RD-Action Report on Recommended Practices for Data Standardisation in the Context of the operation of European Reference Network

Read the report here

Vascular Tumors

Revision of Rare Vascular Tumors in the Orphanet Database

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Highlights from the International Children Camp 2024 for Primary Lymphedema

Innovative-Therapies-and-Personalised-Medicine-for-Rare-Diseases

Discover the Latest Innovations in Rare Diseases Treatment with this Free Online Course

The European Joint Programme on Rare Diseases building the rare diseases research ecosystem

Celebrating Five Years of Progress with the European Joint Programme on Rare Diseases (EJP RD)

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New Infographic and Coloring Book for Children with Lymphedema

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Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month

Rare Barometer Survey Webinar

New Survey on the Impact of Rare Diseases: Launching July 10th, 2024

ERICA 4th General Assembly

ERICA 4th General Assembly & ERN Research Conference in Udine, Italy

End-user Training for the EJP RD Virtual Platform

Join the EJP RD End-user Training Webinar on June 26, 2024!