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Home - News and Events - News - Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

October 05 2017

Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

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Output of the RD-Action workshop on Data Standardisation, co-hosted by the European Commission (DG Sante) (April 2017)

RD-Action Report on Recommended Practices for Data Standardisation in the Context of the operation of European Reference Network

Read the report here

Exchange Program Interview

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Exchange Programme Interview: Dr. Daan Bosshardt

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Patient Testimonial of Alejandro, Living with Lymphoedema

World Lymphedema Day

World Lymphoedema Day 2025

New Publication on Patient Pathway for Diagnosing and Managing Capillary Malformations

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VASCERN Marks Rare Disease Day 2025

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France Launches Fourth National Rare Diseases Plan

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Highlights of the VASCERN Vascular Anomalies (VASCA) Working Group Winter Meeting 2025

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European Commission Releases Key Documents on Rare Diseases and European Reference Networks