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Home - News and Events - News - Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

October 05 2017

Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks

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Output of the RD-Action workshop on Data Standardisation, co-hosted by the European Commission (DG Sante) (April 2017)

RD-Action Report on Recommended Practices for Data Standardisation in the Context of the operation of European Reference Network

Read the report here

10 January 2025

New Research Highlights Advances in Understanding and Managing Hereditary Haemorrhagic Telangiectasia (HHT)

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09 January 2025

RDI Launches Youth Leadership Programme

09 January 2025

RealiseD Project Launched to Transform Clinical Trials for Rare Diseases

Research Highlight Twitter Post

08 January 2025

VASCERN welcomes young doctors as third representatives

VASCA CPMS 2.0 Case Discussion

17 December 2024

VASCERN holds its first Patient Case Discussion using CPMS 2.0

10 December 2024

CADASIL Do’s and Don’ts for Patients Factsheet Now Available

09 December 2024

New Patient Pathway for Kaposiform Hemangioendothelioma (KHE) Now Available!

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06 December 2024

Advancing Research and Global Collaboration at the 2024 CADASIL Symposium

05 December 2024

European Reference Networks 2024 Evaluation Report Highlights Achievements and Opportunities