VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
In order to support the European Commission’s actions and to improve the management of rare diseases, Eurordis has launched the #Pledge4RD campaign to challenge Members of the European Parliament (MEP) to pledge their support for rare diseases before the upcoming European elections (May 23-36, 2019).
Their idea is simple: contact your returning MEP or a candidate MEP, have them download a #Pledge4RD sign and post a photo on social media using the hashtags #Pledge4RD, #EUelections2019 and tagging @eurordis to show their support for rare disease patients.
Rare diseases affect 30 million people in the EU so it is essential that MEPs continue to support a political framework that helps and strengthens the rare disease community.
Link to full article on the Eurordis website here
Link for further information here