VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
We are pleased to announce that the first PoK video from our VASCERN Pediatric and Primary Lymphedema Working Group (PPL-WG) is now available on our Youtube channel!
The PoK is entitled “An Overview of Pediatric and Primary Lymphedema” and was created by Natascha Assies (NLNet), ePAG Co-chair of the PPL-WG and validated by the experts of the PPL-WG. Michelle Daly also contributed to the video.
The video introduces the lymphatic system and gives a brief summary on what exactly is lymphedema. Diagnosis, treatment, and complications are all explained in a clear and understandeable manner, making this video accessible to patients and the general public.
The link to the video is here
Make sure to share it with all of your friends!
The video in English will soon have English subtitles added and translation of the subtitles into French, Dutch, German and Finnish will commence shortly.
As part of our Action Plan, more PoK videos directed towards Healthcare Professionals and/or Patients and the general public from all of our Rare Disease Working Groups will soon be online. So stay tuned!