VASCERN News

19 May 2025
VASCERN HTAD WG launches gene compendia for Heritable Thoracic Aortic Diseases
Eurordis has launched the network of Parliamentary Advocates for Rare Diseases. This network of European and national Members of Parliament will advocate in the goal of improving the lives of people living with a rare disease by encouraging cross-border EU collaboration and ensuring that rare diseases are made a fundamental part of EU, national and regional health programmes.
For more information about this exciting new initiative, click here