VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
With the bilateral agreement signed we are happy to welcome our newest affiliated partner: The Cyprus Institute of Neurology and Genetics, from Nicosia, Cyprus!
This Associated National Center will participate in both the Heritable Thoracic Aortic Diseases Working Group (HTAD WG) and the Medium-Sized Arteries Working Group (MSA WG) and will be represented by Dr. Evy Bashiardes (in both HTAD and MSA), Dr. Anna Keravnou (in HTAD), both molecular biologists, and clinical geneticist Dr. George Tanteles (in MSA). We welcome them to the VASCERN team and look forward to collaborating with them!
As always, we remind you that the designation of “Affiliated Partner” was integrated into the ERN legal framework in order to “achieve the widest possible geographical coverage, exchange of knowledge and best practice throughout Europe.”
Affiliated Partners are named by their national governments.
There are 2 types of Affiliated Partners:
- Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
- A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.
For all documents related to Affiliated Partners see the ERN Board of Member States (BoMS) page here
See the complete list of VASCERN’s 30 full Healthcare Provider members and our now 6 Affiliated Partners here