VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
We are happy to inform you that new translations of VASCERN’s Do’s and Don’ts factsheets for the chapter Pediatric and Primary Lymphedema (PPL-WG) are now available!
As a deliverable of one of VASCERN’s Work Packages (Do’s and Don’ts factsheets: development of guidelines for optimal care of patients facing common problems not related to their rare diseases) the factsheets were developped in order to assist patients and the medical community in knowing the basic do’s and don’ts of common and emergency situations that need to be considered in patients with rare vascular diseases.
The translation of these documents is made possible by the EU co-funding from the second year of VASCERN Framework Partnership Agreement under the 3rd Health Programme of the European Union. They were then kindly reviewed by members of the PPL-WG, in their native languages.
The factsheets are now available in:
German here
Dutch here
Spanish here
Finnish should also be available soon so make sure to check back on the PPL Do’s and Don’ts Factsheets page for updates.
They can also be found on the Dos and Don’ts page under PPL here
Don’t forget that you can also find all of our translated material under the new EU languages button on our homepage. This allows for everyone to select their native language and to see what documents or media are available in the selected language.
