ANDLymph/ Portuguese National Association of Sufferers of Lymphatic Disorders improves knowledge of lymphatic disorders and related illnesses throughout Portugal. The various actions that the Association intends to develop are intended to offer patients and their families a multi-disciplinary network of support and quality care within an economically responsible framework, in addition to developing synergies which encourage greater visibility and acceptance of lymphatic disorders in society and the community and are aimed at improving quality of life.
We welcome Manuela to VASCERN and thank her for her commitment. Thanks to the hard work of Pernille and Manuela, additional ePAG advocates for PPL should soon join the VASCERN ePAG group and reinforce the patient voice for Pediatric and Primary Lymphedema. Stay tuned!
For all information on how to join the VASCERN ePAG please see the Eurordis European Patient Advocacy Groups (ePAGs) information page here.