New HHT Do’s & Don’ts Factsheets: Long Flights, Nosebleeds & Pregnancy

Three new Do’s & Don’ts factsheets have been published by the VASCERN Hereditary Haemorrhagic Telangiectasia (HHT) Working Group, offering clear and practical guidance for patients and healthcare professionals facing common challenges in HHT care.

These concise documents are designed to support informed decision-making in frequent yet potentially complex situations—including travel, pregnancy, and the management of epistaxis (nosebleeds). Each factsheet is based on expert consensus and reflects best practices from across Europe. 

Long Flights with HHT – For Patients

Air travel poses specific risks for people with HHT. This factsheet offers practical recommendations to reduce complications, such as deep vein thrombosis and nosebleeds, while travelling by plane.

Managing Epistaxis (Nosebleeds) – For Patients

Nosebleeds are a frequent symptom in HHT. This resource explains how to manage an acute episode, what to avoid, and how to prevent future bleeds through simple, evidence-based steps.

Pregnancy in HHT – For Healthcare Professionals

Pregnancy in HHT is considered high-risk and requires specialised care. This factsheet supports clinicians with recommendations for screening, monitoring, and delivery, including how to manage complications related to arteriovenous malformations (AVMs).

All three resources are now available on the VASCERN website. Click here to access the factsheets.