We are excited to introduce our new e-learning course on Vascular Ehlers-Danlos Syndrome (vEDS), now available for all patients, caregivers, and healthcare professionals. This comprehensive course is designed to increase awareness and understanding of this rare vascular disease, providing valuable information and support.
What is Vascular Ehlers-Danlos Syndrome?
Vascular Ehlers-Danlos Syndrome (vEDS) is a rare vascular disease that affects the connective tissue, offering essential support to various body parts. vEDS is characterized by thin, translucent skin that bruises easily, arterial, intestinal, and uterine fragility, and distinctive facial features. Due to its rarity and complexity, vEDS poses significant challenges in diagnosis, management, and daily life for those affected.
E-Learning Course Highlights
Our free e-learning course is designed to cover all critical aspects of vEDS. Here’s what you can expect:
- Symptoms and Characteristics: Detailed information on the genetic basis of vEDS, its clinical features, and how it differs from other types of Ehlers-Danlos syndromes.
- Patient Follow-Up: Comprehensive guidance on regular check-ups, monitoring, long-term management strategies and psychological follow-up for patients with vEDS.
- Features: Insights into the features of vEDS, including pregnancy and childhood and the importance of genetic testing.
- Emergency Protocols: Essential information on handling vEDS-related emergencies, providing life-saving knowledge for patients and healthcare providers.
- Interactive Quiz: Test your knowledge with an engaging quiz that reinforces the material covered and helps you retain key information.
There’s no need to enroll – simply click the link below to start learning at your own pace: