New Do’s and Don’ts Factsheet on Skin Care & updated Patient Pathway from the Pediatric and Primary Lymphedema Working Group

The Pediatric and Primary Lymphedema Working Group (PPL-WG) have just released two documents this month: a new Do’s and Don’ts factsheet on skin care for PPL and an updated version 2 of the General Patient Pathway for Pediatric and Primary Lymphedema!

The new Do’s and Don’ts factsheet on skin care for PPL was initiated by the patient advocates of the PPL European Patient Advocacy Group (ePAG) after receiving many questions and concerns about this topic from the patient community. The factsheets were drafted then reviewed by all members of the PPL WG and these important recommendations are now available for you to view and share here.

Version 2 of the General Patient Pathway for Pediatric and Primary Lymphedema is an improved version of the initial patient pathway of the group. Various additional details and examples have been added to the clinical evaluation and investigations sections and the treatment stages have been detailed/clarified, following feedback from the patient community. You can find this updated version here.

As a reminder you can find all the Do’s and Don’ts factsheets from the PPL WG here and the two versions of the Patient Pathway here.

Congratulations to the PPL WG for a very productive month of June!