Key Updates from the Neurovascular Diseases (NEUROVASC) Summer Meeting 2025

A major milestone of the day was the validation of the new Moyamoya e-learning module, including an interactive quiz. This resource—designed by experts in the field—will soon be available to support the training of healthcare professionals across Europe and beyond. Its launch marks a key step forward in equipping clinicians with the knowledge they need to better recognise and manage Moyamoya disease.

In parallel, new Pills of Knowledge (PoKs) are in development, with upcoming topics including Moyamoya and CADASIL. These short, educational videos will serve both professionals and patients by simplifying complex topics into clear, engaging formats.

The VASCERN Coordination Team shared updates on several initiatives, including:

• The VASCERN Exchange Programme and growing Summer School Alumni network,
• Training opportunities for newer or developing centres within the NEUROVASC group,
• And progress on the new Patient Space, an evolving digital resource designed to support patients across their care journey.

The group also received a brief update on upcoming developing partner training sessions, part of VASCERN’s wider efforts to strengthen rare disease care across the EU.

The NEUROVASC registry remains a core focus of the group’s work. During the session, members shared updates on progress and upcoming plans to improve data collection and harmonisation. These efforts are essential in advancing research, improving care standards, and making cross-border collaboration more efficient.

A highlight of the day was a scientific presentation with a live hands-on session, demonstrating a clinical technique on a patient. This practical exchange showcased the group’s strong commitment to both scientific rigour and applied learning.

The group reflected on recent webinar activities and shared ideas for upcoming sessions, including a planned webinar with the European Stroke Organisation (ESO). In addition, dissemination webinars tailored for the patient and medical community are being considered to share key insights and updates in an accessible format.

The NEUROVASC ePAG representative and co-chair, shared updates on ongoing patient involvement. These contributions are essential to shaping accessible and impactful materials that reflect the lived experience of rare disease patients.