General News  
 
  31 October 2025 
  ERDERA to launch the 2026 Joint Transnational Call on rare diseases 
 The Marfan Foundation announces the “Marfan Syndrome and Related Disorders Empowerment Series”, a new series of webinars that will focus on topics that aim to improve the quality of life of people living with Marfan Syndrome and related disorders.
Their first webinar will be on January 30th, 2018 at 3PM Eastern Time (9PM CET), on the subject of physical therapy for people with Marfan syndrome and Ehlers-Danlos syndrome.
To register for this webinar, click here
For further details and to see a list of future webinars, click here