VASCERN News
![Vascular Tumors]( https://vascern.eu/app/themes/trinity/public/images/loading.gif?id=d41d8cd98f00b204e980 )
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
Eurordis has published a call for patient representatives to join the European Patient Advocacy Group. There are EPAG for each ERN project proposal / thematic area of expertise. Patient representatives from any European Patient organisation (member or non member of EURORDIS) are called to join the EPAG and Patient Working Group of our project and answer to the EPAG Matchmaker tool here
Join the EPAG for Rare Multisystemic Vascular Diseases to connect with the patient community
EURORDIS Guide for Patient Advocates in ERNs
All information are available here