We are excited to share that on October 23, 2024, EURORDIS will be hosting its 6th Mental Health & Wellbeing Webinar, titled “How to Deliver a Diagnosis.” This webinar, running from 2:00 pm to 3:30 pm CET, will focus on one of the most sensitive aspects of rare disease care: communicating a diagnosis.
Delivering a rare disease diagnosis is a moment that can deeply impact patients and their families. Done with care and understanding, it can empower those affected, helping them navigate the challenges ahead. However, if handled poorly, it can cause unnecessary distress and erode trust in the healthcare system.
This webinar will feature experts from several European Reference Networks (ERNs), including VASCERN, ERN CRANIO, and ERN-EYE, who will share their experiences and offer practical advice on delivering difficult news. Through real case examples, they will discuss how to approach these conversations with empathy and sensitivity. The session will also include a panel discussion, providing attendees with the chance to ask questions and gain further insights from the specialists.
This is a valuable opportunity for healthcare professionals, patients, and anyone involved in rare disease care to learn more about this crucial topic.
Why Should You Attend?
- Real-Life Examples: Hear directly from specialists who have firsthand experience in delivering rare disease diagnoses.
- Practical Advice: Learn strategies that can help you approach these conversations with the empathy and understanding they require.
- Interactive Panel: Engage with experts and get your questions answered during the panel discussion.
Don’t miss this chance to gain important insights into how to communicate rare disease diagnoses in a way that supports patients and their families.
Register Here for the EURORDIS Mental Health & Wellbeing Webinar on October 23, 2024.
Join us for this important discussion on how to communicate rare disease diagnoses with care and compassion.