EU calls
06 February 2026
ERDERA Transnational 2026 Call: Pre-Proposal Deadline 12 February for Rare Disease Research
Summary
- IRDiRC has launched a call for experts to contribute to four new international activities
- Topics include digital twins, models of care, registries, and digital biomarkers
- The call is open to experts across research, healthcare, policy, ethics, and patient advocacy
- Applications must be submitted by 20 February 2026
The International Rare Diseases Research Consortium (IRDiRC) has launched a new call for experts to support four upcoming activities focused on innovation, coordination of care, and better use of data in rare disease research and healthcare.
These activities aim to bring together international expertise to address shared challenges across the rare disease field. Clearer guidance on data use, clinical endpoints, and models of care can support more efficient and inclusive rare disease research. Over time, this work may lead to better and more equitable care pathways for people living with rare vascular and other rare diseases.
Expert opportunities: digital Twins, biomarkers, and care models
IRDiRC is recruiting specialists across the following activities:
Digital Twins in Rare Disease Research and Care – Landscape and Gap Analysis
This Task Force will explore responsible and equitable implementation models, drawing on expertise in clinical practice, artificial intelligence, ethics, law, health policy, and patient advocacy. View expert profiles and scope.
Models of Care for Care Coordination
This Task Force aims to advance care coordination models and develop a framework for equitable AI that works in both electronic health record (EHR)-rich and EHR-scarce settings. View expert profiles and scope.
Optimising the Use of Data Sources and Registries
This Task Force will provide practical, experience-based guidance for very small patient populations navigating the complex landscape of data standardisation and interoperability. View expert profiles and scope.
Improving the adoption of digital biomarkers and endpoints in therapeutic development
Building on IRDiRC’s published perspectives, this Working Group seeks to increase adoption and qualification of digital biomarkers as clinical endpoints in rare disease drug development. View expert profiles and scope.
How to apply
Interested experts should submit a CV, biosketch, and letter of motivation to the IRDiRC Scientific Secretariat by 20 February 2026. Submit your application to: scientific.secretariat[at]irdirc.org
Find out more about these calls and the application process on the IRDiRC website.