VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
The Hereditary Haemorrhagic Telangiectasia (HHT) Patient Pathway is now available in French! Developped by the VASCERN HHT-WG, this document was kindly translated by the The French Network for Rare Multisystemic Vascular Diseases (FAVA-Multi).
Patient Pathways aim to improve the care and management of patients with a rare disease. They are a very important tool used in defining the best patient care. Each RDWG has already published or is in the process of developping patient pathways for the rare diseases they cover. Once they are published in English we will then translate them into various European languages.
The HHT Patient Pathway in French can be found here
The HHT Patient Pathway in English can be found here and will be translated in the various languages of the HHT-WG in the upcoming months.