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February 03 2016

Our new website is open!

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Our new website is open! 1

Welcome to this new website that supports the first European Reference Networks (ERNs) on Rare Diseases!

Vascular Tumors

Revision of Rare Vascular Tumors in the Orphanet Database

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Highlights from the International Children Camp 2024 for Primary Lymphedema

Innovative-Therapies-and-Personalised-Medicine-for-Rare-Diseases

Discover the Latest Innovations in Rare Diseases Treatment with this Free Online Course

The European Joint Programme on Rare Diseases building the rare diseases research ecosystem

Celebrating Five Years of Progress with the European Joint Programme on Rare Diseases (EJP RD)

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New Infographic and Coloring Book for Children with Lymphedema

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Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month

Rare Barometer Survey Webinar

New Survey on the Impact of Rare Diseases: Launching July 10th, 2024

ERICA 4th General Assembly

ERICA 4th General Assembly & ERN Research Conference in Udine, Italy

End-user Training for the EJP RD Virtual Platform

Join the EJP RD End-user Training Webinar on June 26, 2024!