VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
The French network on rare multisystemic vascular diseases (FAVA-Multi) has released a series of tutorial videos for children with Pediatric and Primary Lymphedema (PPL). These videos were filmed during a therapeutic patient education trip organised by the Reference Center for Primary Lymphedema at Hôpital Cognacq-Jay (VASCERN member of the PPL-WG).
The videos are in French but, thanks to help from VASCERN, subtitles in English are now also available. They are a great resource for children with PPL as they feature children with PPL giving tutorials on the following topics:
- The lymphatic system and lymphedema
- Lymphedema in a few words
- How to dye bandage strips
- Self-bandaging of the legs
- Self-bandaging on the toes
The link to the Youtube Playlist for the 5 videos can be found here.
To access the English subtitles click on the settings button (the gear icon)>subtitles>English!