VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
The European Commission organises the 3rd European Reference Networks Conference in Vilnius on March, 9-10th. This event will be the official launch and start of the first labelized European Reference Networks (see here the list of approved ERNs).
The conference (live webstream will be available here) on 9th will tackle topics such as:
- Coordination, management & governance of ERNs;
- ERN IT platform as core element for eHealth, telemedicine, sharing of expertise in complex clinical cases;
- EU policies and support to ENRs (research, registry platform, rare diseases policy…);
- ERN and national healthcare systems;
- The way forward with perspectives of Healthcare providers, patient representatives, ERN Coordinators, Member States.
The Award Ceremony with Vytenis Andriukaitis, The European Commissioner for Health & Food Safety will take place in the evening.
All information about the conference here
VASCERN will hold its first face-to-face Council kick-off meeting on 10th, with a part of VASCERN HCP and Patient representatives (Chairs and co-chairs of VASCERN Working Groups).