General News
13 January 2026
Second edition of the Data, Ethics and AI training for rare disease advocates
The European Joint Programme on Rare Diseases (EJP RD) is proud to announce a collaboration with the Critical Path Institute (C-Path) to advance technologies and methodologies that are fit for regulatory purposes to further global rare disease research and drug development. Building on their experience, both organizations will support the creation of an interoperable global data ecosystem for rare disease to expedite effective development of new therapies. The partnership will benefit patients, regulators, advocacy stakeholders, researchers, and industry.
Read the press release here: https://www.ejprarediseases.org/press-release-ejp-rd-and-c-path-to-expand-global-impact-and-partnership/