The Rare Disease Day has always been an opportunity to bring attention to the concerns of the millions of people living with rare diseases worldwide. This year, the European Commissioner for Health and Food Safety, Stella Kyriakides, released a significant statement in observance of this day.
In her compelling statement, Commissioner Stella Kyriakides shed light on the often overlooked reality of around 36 million people across the European Union who live with a rare disease daily. A fact that is as staggering as it’s terrifying, given that most of these diseases currently have no cure.
Kyriakides points out that the lack of a cure often leads to feelings of fear and frustration among those affected. This statement not only aims to raise awareness but also provides a comforting reassurance that the struggles faced by these individuals are recognized at such a high level in EU administration.
She stated, “For up to 36 million people across the EU today, living with a rare disease is a daily reality. Most of them have no cure, and this causes fear and frustration.”
The statement is a powerful reminder of the necessity to prioritize healthcare and research for rare diseases. To read the full statement, click here.