Research News
10 January 2025
New Research Highlights Advances in Understanding and Managing Hereditary Haemorrhagic Telangiectasia (HHT)
Living with vascular EDS or supporting someone who is? Join our free webinar with Dr. Michael Frank, a vascular medicine specialist, to learn about why varicose veins occur, symptoms to watch for, and tailored treatment options. This session is designed for patients and caregivers and includes a live Q&A. Don’t miss this opportunity to get expert advice!
The European Reference Network Project “EU collaboration to help patients with rare diseases” led by the ERN Team of the European Commission (DG SANTE) has received the European Ombudsman Award for Good Administration 2017!
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