General News
13 January 2026
Second edition of the Data, Ethics and AI training for rare disease advocates
The ERN Board of Member States has published an official statement on “Affiliated Partners”. ERNs should plan how they will integrate and cooperate with such Affiliated Partners. These Partners will be HCPs designated by Member States, following application process and the relevant criteria. They will be from Member States with no HCPs already involved in the ERN.