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June 23 2016

ECRD Reports

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The European Conference on Rare Diseases & Orphan Products (Edimbourg, 27-29th May 2016) presentations and videos are available here

Data, ethics and AI training Open Academy 2026

13 January 2026

Second edition of the Data, Ethics and AI training for rare disease advocates

16 December 2025

New VASCERN Diagnostic and Management Pathways published for Kaposiform Hemangioendothelioma

European Parliament Rare Disease Consultation Report 2025

08 December 2025

European Parliament Publishes Results from the 2025 Public Consultation on Rare Diseases

ERN Monitoring Report 2025 Key findings

27 November 2025

European Commission Publishes First Monitoring Report on the European Reference Networks

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20 November 2025

100 Days to Rare Disease Day 2026

Applications Closed Announcement Landscape

17 November 2025

Applications Close for the VASCERN Summer School 2026

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31 October 2025

ERDERA to launch the 2026 Joint Transnational Call on rare diseases

Miikka and Caroline WODC 2025

30 October 2025

Prof. Miikka Vikkula Shares Insights at the World Orphan Drug Congress 2025

29 October 2025

New Toolkit on Communication in Rare Diseases