facebook

twitter

youtube

linkedin

Home - News and Events - News - Defining our Network

April 14 2016

Defining our Network

SHARE

brainstorming

Our Members are regularly brainstorming and liaising to define our Network and conduct the self-assessment process. To stay updated on our ERN project development, visit our Network page !

Vascular Tumors

Revision of Rare Vascular Tumors in the Orphanet Database

d46a568a-3854-4266-9b70-537fc0c9a7c5

Highlights from the International Children Camp 2024 for Primary Lymphedema

Innovative-Therapies-and-Personalised-Medicine-for-Rare-Diseases

Discover the Latest Innovations in Rare Diseases Treatment with this Free Online Course

The European Joint Programme on Rare Diseases building the rare diseases research ecosystem

Celebrating Five Years of Progress with the European Joint Programme on Rare Diseases (EJP RD)

pexels-yankrukov-8613062

New Infographic and Coloring Book for Children with Lymphedema

HHT_EUROPE_1080x1080px-2_page-0001-1-1024x1024-1

Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month

Rare Barometer Survey Webinar

New Survey on the Impact of Rare Diseases: Launching July 10th, 2024

ERICA 4th General Assembly

ERICA 4th General Assembly & ERN Research Conference in Udine, Italy

End-user Training for the EJP RD Virtual Platform

Join the EJP RD End-user Training Webinar on June 26, 2024!