facebook

twitter

youtube

linkedin

Home - News and Events - News - Defining our Network

April 14 2016

Defining our Network

SHARE

brainstorming

Our Members are regularly brainstorming and liaising to define our Network and conduct the self-assessment process. To stay updated on our ERN project development, visit our Network page !

New HHT factsheets

New HHT Do’s & Don’ts Factsheets: Long Flights, Nosebleeds & Pregnancy

Key Updates from the Neurovascular Diseases (NEUROVASC) Summer Meeting 2025

what-is-cadasil-webinar-vascern-thumbnail

Webinar Replay: Spectrum of Clinical Manifestations in CADASIL with Prof. Hugues Chabriat

PPL WG Summer Meeting 2025

Highlights from the Paediatric & Primary Lymphoedema (PPL WG) Spring Meeting 2025

CPMS 2.0 Mobile App Launch

CPMS 2.0 Mobile App Launch

Not just a nosebleed - HHT Day Graphic

World HHT Day 2025 – See Beyond

ERDERA-NSS-2025

ERDERA launches €30K networking scheme for rare disease research

ERDERA launches patient survey on rare disease research involvement

Inside the HHT Working Group Spring Meeting 2025