CADASIL Do’s and Don’ts for Patients Factsheet Now Available

Living with a rare condition like Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) can be complex. To support individuals facing this challenge, VASCERN is excited to announce the release of a new CADASIL Do’s & Don’ts factsheet for patients. This resource was developed collaboratively by the NEUROVASC Working Group, including experts and patient advocates, ensuring it is both expert-approved and patient-friendly.

The factsheet, available in English and French, provides practical recommendations for managing CADASIL effectively. It covers topics like maintaining a healthy lifestyle, staying socially active, promoting intellectual wellness, and seeking the right professional care.

What Is CADASIL?

CADASIL is a rare genetic disorder that affects the small blood vessels in the brain. It can lead to migraines, recurrent strokes, cognitive impairment, and other neurological symptoms. While there is currently no cure, proper management of the condition can significantly enhance a patient’s quality of life.

Recognizing the challenges faced by patients and caregivers, the factsheet offers clear, actionable advice tailored to their needs.

What does the CADASIL do’s & don’ts factsheet include?

The factsheet focuses on four key areas to help patients and caregivers improve daily living and manage CADASIL:

1. Healthy Lifestyle Recommendations

2. Maintaining Social Connections

3. Promoting Intellectual Wellness

4. Seeking Professional Support

Who can benefit from the CADASIL Do’s & Don’ts factsheet?

The factsheet is tailored for:

• Patients living with CADASIL: To better understand and manage their condition.
• Caregivers: To provide support and practical advice for daily care.
• Healthcare providers: To complement their guidance with patient-focused recommendations.

This resource provides valuable insights for a proactive approach to care.

How to access the CADASIL Do’s & Don’ts factsheet for patients

The CADASIL factsheet is available for free download in both English and French. Click the link below to access this vital resource:

• Download the CADASIL Do’s & Don’ts Factsheet for Patients in English
• Download the CADASIL Do’s & Don’ts Factsheet for Patients in French