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News and Events

Events News Newsletter

News

Month

Year

May 2025

ERDERA-NSS-2025

ERDERA launches €30K networking scheme for rare disease research

ERDERA launches patient survey on rare disease research involvement

BEE meeting 2025

Key takeaways from the BEE Meeting 2025 on Hereditary Haemorrhagic Telangiectasia

Inside the HHT Working Group Spring Meeting 2025

Seventy-seventh World Health Assembly, Geneva, Switzerland, 27 May - 1 June 2024

WHA resolution on rare diseases officially adopted by WHO

22nd CG Meeting

VASCERN presents the summer school initiative at the 22nd ERNs coordinator group meeting

New HTAD Gene Compendia Released

VASCERN HTAD WG launches gene compendia for Heritable Thoracic Aortic Diseases

REDS4VEDS Day 2025: 10 years of awareness, advocacy, and the push for better care

Empowering you to live better with vEDS Webinar Thumbnail (2)

Webinar Replay: Living Better with vEDS – VASCERN’s Tools

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