Chair
Pr. Julie De BACKER
Cardiologist and clinical geneticist, HTAD-WG Co-Chair
Pregnancy
Members
The Pregnancy Transversal Working Group (WG) is composed of a dedicated team of healthcare professionals from various specialities, all committed to improving the care of pregnant women with rare vascular diseases. This multidisciplinary group brings together expertise in fields such as cardiology, obstetrics, genetics, and vascular surgery to ensure that patients receive the highest standard of care throughout pregnancy, delivery, and postpartum.
Each member of the working group plays a crucial role in developing clinical guidelines, providing expert advice, and supporting research efforts. Their collective knowledge and experience help shape the recommendations and resources made available to healthcare providers and patients within the VASCERN network.
Meet the Members
Cliniques universitaires Saint-Luc
VASCA European Reference Center, Center for Congenital Vascular Defects
Pr. Laurence M. BOON
Plastic and Reconstructive Surgeon
Dr. Corinne HUBINONT
Obstetrician-Gynecologist
Odense University Hospital (OUH)
HHT European Reference Center, OUH HHT Center
Dr. Pernille M TØRRING
Clinical Geneticist
AP-HP Hôpital Bichat – Claude-Bernard
HTAD European Reference Center, CRMR Marfan Syndrome and related disorders
Pr. Guillaume JONDEAU
Cardiologist
Dr. Agnès BOURGEOIS-MOINE
Obstetrician-Gynecologist
AP-HP Hôpital Européen Georges Pompidou
MSA European Reference Center, Rare Vascular Diseases Reference Centre (CRMR)
Dr. Michael FRANK
Consultant Cardiologist
Alexandra BENACHI
Obstetrician-Gynecologist
Hôpital Femme Mère Enfant – HCL
HHT European Reference Center, CRMR Rendu-Osler
Dr. Olivier DUPUIS
Obstetrician-Gynecologist, HHT-WG
Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation)
Petra BORGARDS
Patient Advocate
Essen University Hospital
HHT European Reference Center, Essen Center for Rare Diseases
Dr. Freya DROEGE
ENT Physician
Erasmus University Medical Center
MSA European Reference Center, Department of Clinical Genetics and Cardiology
Pr. Jolien ROOS-HESSELINK
Cardiologist
Nij Smellinghe hospital
PPL European Reference Center, Expert Center for lymphovascular medecine
Dr. Kirsten VAN DUINEN
Dermatologist
Dr. Janine DICKINSON
Dermatologist
Radboud University Medical Center
VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)
Dr. Carine VAN DER VLEUTEN
Dermatologist
Asociacion Española de Afectados por el Sindrome de Marfan (SIMA)
Carmen QUIRÓS PAZ
Patient Advocate
Karolinska University Hospital
VASCA European Reference Center, Department of Reconstructive Plastic Surgery
Dr. Edit NAGY
Cardiologist