Do’s and Don’ts
As a deliverable of one of VASCERN’s Work Packages (development of guidelines for optimal care of patients facing common problems not related to their rare diseases) the Do’s and Don’ts factsheets were developed in order to assist patients and the medical community in knowing the basic do’s and don’ts of common and emergency situations (e.g. delivery, anaesthesia, stroke, surgery) that need to be considered in patients with rare vascular diseases.
La fiche pratique “CADASIL – A faire et ne pas faire pour les patients”, développée par le Groupe de Travail NEUROVASC de VASCERN, propose des recommandations accessibles et adaptées aux patients pour aider les patients atteints de CADASIL (Artériopathie Cérébrale Autosomique Dominante avec Infarctus Sous-corticaux et Leucoencéphalopathie) à mieux gérer leur santé. Cette fiche pratique aborde des thèmes essentiels tels qu’un mode de vie sain, l’engagement social, le bien-être intellectuel et le recours à des professionnels de santé, afin d’améliorer la qualité de vie des patients et de leurs proches.
Il est disponible en anglais.
The “CADASIL Do’s and Don’ts for Patients” factsheet, developed by VASCERN’s NEUROVASC Working Group, offers patient-friendly recommendations to help patients with Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) manage their health. Covering essential topics such as healthy lifestyle choices, social engagement, intellectual wellness, and seeking professional help, this guide empowers patients and caregivers with practical advice to improve their quality of life.
It is available in English and French.