Happening soon – April 28: Don’t miss our webinar on headache in Moyamoya Angiopathy!

Persistent headaches are a common but poorly understood symptom for many people with Moyamoya angiopathy.

Join us on Monday, April 28 at 17:00 CEST for a free webinar with leading neurologists Prof. Anne Hege Aamodt and Dr. Dominique Hervé. They will explore this challenging symptom and share the latest research insights that might help improve the quality of life of people living with Moyamoya.

April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

Home - Network - Rare Disease Working Groups - CADASIL, Moyamoya (NEUROVASC-WG) - Clinical Decision Support Tools - Clinical Outcome Measures

CADASIL, Moyamoya (NEUROVASC-WG)

Introduction Diseases covered

Expert & Centers

Full Members Developing Partners Young Leads Patient Representatives Map of Centers

Clinical Decision Support Tools

Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures

Research

Clinical Trials/Observational Studies Research Publications

Training and Education

E-Learning Pills of Knowledge (PoK) Webinars

Clinical Outcome Measures

The Clinical Outcome Measures for the NEUROVASC WG is coming soon.