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Home - Network - Working Groups - Rare Disease Working Groups - Vascular Ehlers-Danlos syndr. (MSA-WG) - Registry
Vascular Ehlers-Danlos syndr. (MSA-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
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Clinical Trials/Observational Studies Research Publications
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Registry

The VASCERN Registry is an essential tool that offers a centralized repository for clinical data and information related to rare vascular diseases. By gathering clinical data, the registry aims to improve research, diagnosis, and care for patients. With standardized data collection and collaboration among healthcare professionals, researchers, and patients, the registry empowers personalized treatment, fosters innovation, and enhances patient care.

More information on the MSA-WG registry available on the Registry page here.

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