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Vascular Ehlers-Danlos syndr. (MSA-WG)

Introduction Diseases covered

Experts & Centers

Full Members Supporting Partners Developing Partners Patient Representatives Map of Centers

Clinical Decision Support Tools

Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures

Research

Clinical Trials/Observational Studies Research Publications

Training and Education

E-Learning Pills of Knowledge (PoK) Webinars

Supporting Partners

Supporting Partners since Brexit

United Kingdom

St George’s University Hospitals NHS Foundation Trust, London

Primary and Paediatric Lymphedema Clinic, Dermatology and Clinical Genetics

Leema ROBERT 1

Dr. Leema ROBERT

Consultant Clinical Genetist – MSA Chair 2017-2021 and Collaborating Expert

Yaso EMMANUEL

Dr. Yaso EMMANUEL

Consultant Cardiologist – Collaborating Expert