Do’s and Don’ts
As a deliverable of one of VASCERN’s Work Packages (development of guidelines for optimal care of patients facing common problems not related to their rare diseases) the Do’s and Don’ts factsheets were developed in order to assist patients and the medical community in knowing the basic do’s and don’ts of common and emergency situations (e.g. delivery, anaesthesia, stroke, surgery) that need to be considered in patients with rare vascular diseases.
These factsheets provides expert consensus recommendations for the care of individuals with Vascular Ehlers-Danlos Syndrome (vEDS), a rare inherited connective tissue disorder. Designed for both patients and healthcare professionals, the document outlines essential “Do’s and Don’ts” in frequent clinical situations, including vascular emergencies, pregnancy and delivery, and medical management. Developed and updated by the VASCERN Medium-Sized Arteries Working Group (MSA-WG), the factsheets aim to support safe, informed decision-making and promote best practices across Europe.
Version 2, updated in October 2024.