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Home - Network - Rare Disease Working Groups - Vascular Ehlers-Danlos syndr. (MSA-WG) - Clinical Decision Support Tools - Clinical Practice Guidelines (CPGs) adopted
Vascular Ehlers-Danlos syndr. (MSA-WG)
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Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
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Clinical Practice Guidelines (CPGs) adopted

The Medium Sized Arteries Working Group (MSA-WG) follows (and have generated) existing (national and international) guidelines. The guidelines reflect the latest scientific evidence and are regularly reviewed and updated to ensure they remain up-to-date.

Results (8)
Canadian Cardiovascular Society position statement on the management of thoracic aortic disease
March 03 2023

Boodhwani M, Andelfinger G, Leipsic J, Lindsay T, McMurtry MS, Therrien J, Siu SC; Canadian Cardiovascular Society. Canadian Cardiovascular Society position statement on the management of thoracic aortic disease. Can J Cardiol. 2014 Jun;30(6):577-89.

Ehlers-Danlos syndrome: how to diagnose and when to perform genetic tests
March 03 2023

Sobey G. Ehlers-Danlos syndrome: how to diagnose and when to perform genetic tests. Arch Dis Child. 2015 Jan;100(1):57-61

Treatment of vascular Ehlers-Danlos syndrome: a systematic review
March 03 2023

Bergqvist D, Björck M, Wanhainen A. Treatment of vascular Ehlers-Danlos syndrome: a systematic review. Ann Surg. 2013 Aug;258(2):257-61. doi: 10.1097/SLA.0b013e31829c7a59. Review

Management of pregnancy in women with genetic disorders, Part 1: Disorders of the connective tissue, muscle, vascular, and skeletal systems
March 03 2023

Chetty SP, Shaffer BL, Norton ME. Management of pregnancy in women with genetic disorders, Part 1: Disorders of the connective tissue, muscle, vascular, and skeletal systems.Obstet Gynecol Surv. 2011 Nov;66(11):699-709. Review

The Ehlers-Danlos syndromes
March 03 2023

Malfait F, Castori M, Francomano CA, Giunta C, Kosho T, Byers PH. The Ehlers-Danlos syndromes. Nat Rev Dis Primers. 2020 Jul 30;6(1):64. doi: 10.1038/s41572-020-0194-9. PMID: 32732924.

Diagnosis, natural history, and management in vascular Ehlers-Danlos syndrome
March 03 2023

Diagnosis, natural history, and management in vascular Ehlers-Danlos syndrome. Byers PH, Belmont J, Black J, De Backer J, Frank M, Jeunemaitre X, Johnson D, Pepin M, Robert L, Sanders L, Wheeldon N. Am J Med Genet C Semin Med Genet. 2017 Mar;175(1):40-47. doi: 10.1002/ajmg.c.31553. Review. PMID: 28306228

Abdominal emergencies in type IV ehlers-Danlos syndrome
March 03 2023

Benchellal ZA, Huten N, Danquechin Dorval E, Podeur L, Rahili A, Lemeret S, De Muret A. Abdominal emergencies in type IV ehlers-Danlos syndrome. Gastroenterol Clin Biol. 1998 Mar;22(3):343-5. French

Recommendations for anesthesia and perioperative management in patients with Ehlers-Danlos syndrome(s)
March 03 2023

Wiesmann T, Castori M, Malfait F, Wulf H. Recommendations for anesthesia and perioperative management in patients with Ehlers-Danlos syndrome(s). Orphanet J Rare Dis. 2014 Jul 23;9:109. doi: 10.1186/s13023-014-0109-5. Review

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