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Home - Network - Working Groups - Rare Disease Working Groups - Vascular Ehlers-Danlos syndr. (MSA-WG) - Clinical Decision Support Tools - Clinical Outcome Measures
Vascular Ehlers-Danlos syndr. (MSA-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
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Research
Clinical Trials/Observational Studies Research Publications
Training and Education
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Clinical Outcome Measures

The MSA-WG is currently working on defining their clinical outcome measures for vEDS.

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