Vascular Ehlers-Danlos syndr. (MSA-WG)

The MSA Working Group is built upon Multidisciplinary Centres of Excellence that are collaborating. The MSA-WG scope includes mainly Vascular Ehlers Danlos Syndrome. It will be enlarged to the other medium sized arteries diseases in the future.

The Medium-Sized Arteries (MSA WG) is one of the six Rare Disease Working Groups (RDWGs) of VASCERN that specialize in a particular type/group of rare vascular disease(s).

The MSA-WG is chaired by Dr. Michael Frank, from the French Reference Centre for Rare Vascular Diseases, CRMR Rare Vascular Diseases, CHU Paris IdF Ouest – HEGP Hôpital Européen Georges Pompidou, in Paris, France and Co-Chaired by Dr. Fransiska Malfait from the Center of Medical Genetics at Ghent University Hospital, in Ghent, Belgium.

The MSA-WG cooperates with the European Patient Advocacy Group (ePAG), which is represented by ePAG Co-Chair for MSA, Eva Collado (ANSEDH – Spanish National Patient Organization for Ehlers-Danlos)The MSA WG equally collaborates with the Ehlers-Danlos Society.