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Home - Network - Working Groups - Rare Disease Working Groups - Marfan, Loeys-Dietz syndr…(HTAD-WG) - Training and Education - Webinars
Marfan, Loeys-Dietz syndr…(HTAD-WG)
Introduction
Disease Information
Overview Genetic Testing for Hereditary Thoracic Aortic Aneurysm Disease Familial Thoracic Aortic Aneurysm and Dissection (Familial TAAD) Marfan Syndrome
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Outcome Measures
Registry by The Registry WG
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
Sub Working Groups
Aortic Imaging Gene Compendium Pediatrics Variants

Webinars

Our webinars are a unique opportunity for healthcare professionals and patients or caregivers to learn about rare vascular diseases from leading experts in the field. They provide an interactive forum for participants to ask questions and get answers. The webinars are recorded and can be consulted at a later date on our YouTube channel.

Results (3)
VASCERN Webinar: Aortic surgery in Marfan syndrome (and other HTADs) Q&A session
January 03 2023
VASCERN Webinar: Aortic surgery in Marfan syndrome (and other HTADs)
January 03 2023
ERN-EYE and VASCERN Joint Webinar – Marfan an update
January 03 2023
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