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Home - Network - Rare Disease Working Groups - Marfan, Loeys-Dietz syndr…(HTAD-WG) - Experts & Centers - Young Leads
Marfan, Loeys-Dietz syndr…(HTAD-WG)
Introduction
Disease Information
Overview Genetic Testing for Hereditary Thoracic Aortic Aneurysm Disease Familial Thoracic Aortic Aneurysm and Dissection (Familial TAAD) Marfan Syndrome
Experts & Centers
Full Members Affiliated Partners Developing Partners Young Leads Patient Representatives Map of Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Outcome Measures
Registry by The Registry WG
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
Sub Working Groups
Aortic Imaging Gene Compendium Pediatrics Variants

Young Leads

The Young Representatives initiative brings together early-career healthcare professionals passionate about advancing care for rare vascular diseases. These representatives are committed to continuous training, clinical excellence, and driving innovation within VASCERN.

Netherlands
Amsterdam University Medical Center, Amsterdam

HTAD European Reference Center, Department of Cardiology

Nimrat Grewal
Dr. Nimrat GREWAL
Cardiothoracic Surgeon
Pubmed
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