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Home - Network - Working Groups - Rare Disease Working Groups - Marfan, Loeys-Dietz syndr…(HTAD-WG) - Clinical Decision Support Tools - Do's and Don'ts
Marfan, Loeys-Dietz syndr…(HTAD-WG)
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Overview Genetic Testing for Hereditary Thoracic Aortic Aneurysm Disease Familial Thoracic Aortic Aneurysm and Dissection (Familial TAAD) Marfan Syndrome
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Do’s and Don’ts

As a deliverable of one of VASCERN’s Work Packages (development of guidelines for optimal care of patients facing common problems not related to their rare diseases) the Do’s and Don’ts factsheets were developped in order to assist patients and the medical community in knowing the basic do’s and don’ts of common and emergency situations (e.g. delivery, anaesthesia, stroke, surgery) that need to be considered in patients with rare vascular diseases.

Results (8)
Do’s and Don’ts Factsheets on Marfan syndrome and Related Disorders
October 18 2023

The new version 2 of the Marfan syndrome and Related Disorders Do’s & Don’ts. 

Marfans syndrom och relaterade sjukdomar (HTAD)
April 17 2023
Do’s en Don’ts: Marfansyndroom en verwante aandoeningen
April 15 2023
Tennivalók és Tévedések: Marfanszindróma és hasonló rendellenességek
April 14 2023
Do’s und Don’ts: Marfan-Syndrom und verwandte Erkrankungen
March 20 2023
Qué hacer y qué no hacer : Síndrome de Marfan y enfermedades relacionadas (HTAD)
March 20 2023
Fare e non fare: Sindrome di Marfan e disturbi (HTAD)
March 20 2023
Loeys-Dietz syndrome Do’s and Don’ts Factsheets
September 29 2021
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