April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

April 28, 2025 – Upcoming webinar: Headache in Patients with Moyamoya Angiopathy, open to healthcare professionals and interested participants. Register here | May 13, 2025 – Upcoming webinar: VASCERN MSA-WG: Empowering you to live better with vascular Ehlers-Danlos syndrome (vEDS) – Unlock the knowledge you need, open to patients, caregivers & families. Register here

Home - Network - Rare Disease Working Groups - Osler-Weber-Rendu disease (HHT-WG) - Experts & Centers - Supporting Partners

Osler-Weber-Rendu disease (HHT-WG)

Introduction Disease Information

Experts & Centers

Full Members Supporting Partners Young Leads Patient Representatives Map of Centers

Clinical Decision Support Tools

Patient Pathways Do’s and Don’ts Clinical Practice Guidelines Expert Consensus Statements Outcome Measures

Research

Clinical Trials/Observational Studies Research Publications

Training and Education

E-Learning Pills of Knowledge Webinars

Projects/Initiatives

Based on Evidence European (BEE) Meeting

First Edition BEE Meeting | 25th May, 2023

Supporting Partners

Supporting Partners since Brexit

United Kingdom

Hammersmith Hospital, London

Imperial College Healthcare NHS Trust

Claire SHOVLIN

Pr. Claire SHOVLIN

Medical specialist and pulmonologist – HHT-WG Chair 2017-2021 and Collaborating Expert