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Home - Network - Rare Disease Working Groups - Osler-Weber-Rendu disease (HHT-WG) - Experts & Centers - Full Members
Osler-Weber-Rendu disease (HHT-WG)
Introduction Disease Information
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Based on Evidence European (BEE) Meeting
First Edition BEE Meeting | 25th May, 2023

Full Members

The HHT Working Group is made up of leading healthcare professionals and specialized centers from across Europe who are committed to providing the highest level of care and support to individuals and families affected by HHT. It is distinguished by its multidisciplinary approach, integrating the latest research and treatment modalities to offer comprehensive care for HHT. View our list of full HCP members.

Working Group Leads

Anette Kjeldsen
Chair
Pr. Anette KJELDSEN
Otorhinolaryngologist
Pubmed
Guido MANFREDI 1
Co-Chair
Dr. Guido MANFREDI
Gastroenterologist
Pubmed

Members

Denmark
Odense University Hospital (OUH), Odense

HHT European Reference Center, HHT Center OUH

Anette Kjeldsen
Pr. Anette KJELDSEN
Otorhinolaryngologist
Pubmed
Pernille M TØRRING
Dr. Pernille M TØRRING
Clinical Geneticist
Pubmed
France
Hôpital Femme Mère Enfant – HCL, Bron

HHT European Reference Center, Rendu-Osler Disease Reference Center

Sophie DUPUIS-GIROD 117
Dr. Sophie DUPUIS-GIROD
Pediatrician and Geneticist
Pubmed
Ruben HERMANN 1
Dr. Ruben HERMANN
ENT Physician
Pubmed
Germany
Essen University Hospital, Essen

HHT European Reference Center, West German Morbus Osler Center

Universitätsklinikum Marburg, Marburg

HHT European Reference Center, Universitätsklinikum Marburg Angioma Center

Urban GEISTHOFF
Pr. Urban GEISTHOFF
Otorhinolaryngologist
Pubmed
Andreas MAHNKEN
Pr. Andreas MAHNKEN
Radiologist
Pubmed
Italy
ASST CREMA – Ospedale Maggiore di Crema

HHT European Reference Center, Gastroenterology and Digestive Endoscopy Unit

Guido MANFREDI 1
Dr. Guido MANFREDI
Gastroenterologist
Pubmed
Azienda Ospedaliero Universitaria Consorziale Policlinico

HHT European Reference Center, Internal medicine

Sophie DUPUIS-GIROD 68
Dr. Gennaro Mariano LENATO
Genetic Biologist
Pubmed
Netherlands
St. Antonius Hospital, Nieuwegein

HHT European Reference Center, Rendu Osler Weber Expertise Center

Hans-Jurgen MAGER
Dr. Hans-Jurgen MAGER
Pulmunologist
Pubmed
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