Pr. Sarah THOMIS
Vascular Surgeon
Education
Members
UZ Leuven, Leuven
PPL European Reference Center, Center for Lymphedema
Cliniques universitaires Saint-Luc, Brussels
VASCA European Reference Center, Center for Congenital Vascular Defects
Pr. Miikka VIKKULA
Clinical Geneticist
Odense University Hospital (OUH), Odense
HHT European Reference Center, HHT Center OUH
Pr. Anette KJELDSEN
Otorhinolaryngologist
AP-HP Hôpital Européen Georges Pompidou, Paris
MSA European Reference Center, Reference Center for Rare Arterial Diseases
Pr. Tristan MIRAULT
Professor of Vascular Medicine
AP-HP Hôpital Lariboisiere, Paris
VASCA European Reference Centre, Reference center for superficial vascular anomalies
Dr. Annouk Anne BISDORFF
Neuroradiologist
AP-HP Hôpital Bichat – Claude-Bernard, Paris
HTAD European Reference Center, Reference center for Marfan syndrome, related diseases and rare aortic diseases
Pr. Guillaume JONDEAU
Cardiologist
Gloria SOMALO BARRANCO
VASCERN Science & Education Project Officer
Universitätsklinikum Marburg, Marburg
HHT European Reference Center, Universitätsklinikum Marburg Angioma Center
Pr. Urban GEISTHOFF
Otorhinolaryngologist
University Medical Center Hamburg-Eppendorf, Hamburg
HTAD European Reference Center, German Aortic Center Hamburg
Dr. Meike RYBCZYNSKI
Cardiologist
Careggi University Hospital, Florence
HTAD European Reference Center, Regional Tuscany Reference Center for Marfan Syndrome and related disorders
Dr. Betti GIUSTI
Molecular Biologist
Istituto Neurologico Carlo Besta | Fondazione IRCCS, Milan
NEUROVASC European Reference Center, Department of Clinical Neuroscience
Dr. Francesco ACERBI
Neurosurgeon
Erasmus University Medical Center, Rotterdam
HTAD European Reference Center, Department of Clinical Genetics and Cardiology
Dr. Martijn KAULING
Congenital Cardiologist
Nij Smellinghe Hospital, Drachten
PPL European Reference Center, Expertise Center for Lymphovascular Medicine
Dr. Robert J. DAMSTRA
Dermatologist
Radboud University Medical Center, Nijmegen
HTAD European Reference Center, Department of Clinical Genetics
Dr. Roland VAN KIMMENADE
Cardiologist
Radboud University Medical Center, Nijmegen
VASCA European Reference Center, Expertise Center for Hemangiomas and Congenital Vascular Abnormalities (Hecovan)
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
ANSEDH – Spanish National Patient Organization for Ehlers-Danlos
Eva COLLADO
Patient Advocate
Vall d’Hebron University Hospital, Barcelona
HTAD European Reference Center, Cardiology Unit
Dr. Gisela TEIXIDÓ
Cardiologist
Uppsala University Hospital, Uppsala
MSA European Reference Center, Department of Medical Sciences
Dr. Anna STENBORG
Physician
Derby Teaching Hospitals NHSF Trust, Derby
Paediatric and Primary Lymphedema Department
Dr. Vaughan KEELEY
Lymphoedema Consultant – Collaborating Expert