Pr. Sarah THOMIS
Vascular Surgeon
Education
Members
University Hospitals Leuven
PPL European Reference Center, Leuven Lymphovenous Center
Cliniques universitaires Saint-Luc
VASCA European Reference Center, Center for Congenital Vascular Defects
Pr. Miikka VIKKULA
Clinical Geneticist
Odense University Hospital (OUH)
HHT European Reference Center, OUH HHT Center
Pr. Anette KJELDSEN
Otorhinolaryngologist
AP-HP Hôpital Européen Georges Pompidou
MSA European Reference Center, Rare Vascular Diseases Reference Centre (CRMR)
Pr. Tristan MIRAULT
Professor of Vascular Medicine
AP-HP Hôpital Lariboisiere
VASCA European Reference Centre, Department of Neuroradiology and ENT
Dr. Annouk Anne BISDORFF
Neuroradiologist
AP-HP Hôpital Bichat – Claude-Bernard
HTAD European Reference Center, CRMR Marfan Syndrome and related disorders
Pr. Guillaume JONDEAU
Cardiologist
Gloria SOMALO BARRANCO
VASCERN Science & Education Project Officer
UKGM – Universitätsklinikum Marburg
HHT European Reference Center, Universitätsklinikum Marburg Angioma Center
Pr. Urban GEISTHOFF
Otorhinolaryngologist
University Medical Center Hamburg-Eppendorf
HTAD European Reference Center, University Heart Center Hamburg
Dr. Meike RYBCZYNSKI
Cardiologist
Careggi University Hospital
HTAD European Reference Center, Regional Tuscany Reference Center for Marfan Syndrome and related disorders
Dr. Betti GIUSTI
Molecular Biologist
Fondazione IRCCS Istituto Neurologico Carlo Besta
NEUROVASC European Reference Center, Neurosurgery Department
Dr. Francesco ACERBI
Neurosurgeon
Erasmus University Medical Center
HTAD European Reference Center, Department of Clinical Genetics and Cardiology
Dr. Martijn KAULING
Congenital Cardiologist
Nij Smellinghe hospital
PPL European Reference Center, Expert Center for lymphovascular medecine
Dr. Robert J. DAMSTRA
Dermatologist
Radboud University Medical Center
HTAD European Reference Center, Department of Clinical Genetics
Dr. Roland VAN KIMMENADE
Cardiologist
Radboud University Medical Center
VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
ANSEDH – Spanish National Patient Organization for Ehlers-Danlos
Eva COLLADO
Patient Advocate
Hospital Universitari Vall d’Hebron
HTAD European Reference Center, Cardiology Unit
Dr. Gisela TEIXIDÓ
Cardiologist
Uppsala University Hospital
MSA European Reference Center, Department of Medical Sciences
Dr. Anna STENBORG
Physician
Derby Teaching Hospitals NHSF Trust
Paediatric and Primary Lymphedema Department
Dr. Vaughan KEELEY
Lymphoedema Consultant – Collaborating Expert